{"title":"RETpositive","summary":"Patient-driven nonprofit for people with RET-positive cancers of any type, with private Facebook support groups for patients and caregivers, education and research funding.","body":"RETpositive is a patient-driven 501(c)(3) nonprofit for people with RET-positive cancer, which is caused by a mutation or abnormal rearrangement of the RET gene. RET changes show up most often in lung cancer and several thyroid cancers, and in an estimated 1 to 2 percent of other cancers, including ovarian, pancreatic, salivary, breast and colorectal. The group is open to anyone with a RET-driven cancer, whatever the tumor type.\n\n## What they offer\n\n- Private Facebook support groups for patients and caregivers: RETpositive, for any RET-driven cancer, and LUNGevity RET Renegades for lung cancer.\n- Education: videos, webinars, patient stories and pages on treatments, resources and RET clinical trials.\n- Research funding. RETpositive says 100 percent of donations go directly to research.\n- A quarterly newsletter on RET trials, therapies and stories.\n- A collaboration with 23andMe and other lung cancer groups on the Lung Cancer Genetics Study, open to U.S. adults who have had lung cancer.\n\n## How to join and what it costs\n\nAsk to join the private Facebook group that fits you, or sign up for the newsletter on its site. I did not see any fee to join (checked October 24, 2026).\n\n## How it fits with other groups here\n\nRETpositive is one of the biomarker groups, like [ALK Positive](/companies/alk-positive/), [EGFR Resisters](/companies/egfr-resisters/), [The ROS1ders](/companies/the-ros1ders/) and [MET Crusaders](/companies/met-crusaders/). Its lung cancer group runs with [LUNGevity](/companies/lungevity/). My [tumor testing guide](/resources/tumor-testing/) covers how biomarkers like RET are found.\n\n## Questions I would ask\n\n- Which RET treatments and trials are people in the group discussing for my cancer type?\n- What resistance patterns have members seen after a first RET drug?\n- Which experts do members see for RET-positive cancer?\n- Is there a group for my caregiver?\n\n## Contacts\n\n- Website: [retpositive.org](https://www.retpositive.org/)","topics":["expert-support","tumor-testing"],"capabilities":["patient-support","research-support"],"organizationType":"patient-community","services":["peer-support","advocacy","patient-education"],"communityFocus":["People with RET-positive cancer","Caregivers"],"sources":[{"id":"home","label":"RETpositive home page","url":"https://www.retpositive.org/","publisher":"RETpositive","checkedAt":"2026-10-24","supports":"Patient-driven 501(c)(3) nonprofit; RET mutation or rearrangement; most common in lung and several thyroid cancers; 1-2% of other cancers including ovarian, pancreatic, salivary, breast and colorectal; private Facebook groups RETpositive (any RET-driven cancer) and LUNGevity RET Renegades; 100% of donations go to research; quarterly newsletter; Lung Cancer Genetics Study with 23andMe and 20 other lung cancer groups; videos, webinars, RET clinical trials pages; EIN 87-1841713.","type":"official"}],"applicability":"For people with a RET-positive cancer of any type, and their caregivers, who want to connect with others who share the same biomarker. Inclusion is not a recommendation or a finding that this group is right for your situation.","limitations":"Group details are reported by the organization unless noted, as of October 2026. Peer groups share experience, not medical advice; talk with your care team about testing and treatment.","disclosure":{"type":"none","text":"I have no financial or business relationship with RETpositive."},"reviewedAt":"2026-10-24","relatedIds":["f7221927-6b87-4be3-9a7c-906768a192a5","656030c7-047a-40e9-b47b-14b19f3fd2bd","068a85d5-9225-4be5-a74e-03d07a77c661","3e02cb17-befd-42aa-8a8c-6e01766e3022"],"assetIds":["bb5ce0a8-3e53-4c15-a81a-ed96516bef22","df0c0d54-1632-4887-8839-e47dd0270b4c"],"relatedX":[],"website":"https://www.retpositive.org/","serviceStatus":"available","access":{"label":"RETpositive home and community","url":"https://www.retpositive.org/"},"regions":["United States","International"],"facts":[{"label":"Who it serves","value":"People with any RET-driven cancer, and caregivers.","sourceIds":["home"]},{"label":"Where RET shows up","value":"Most often lung and thyroid cancers; 1 to 2 percent of several others.","sourceIds":["home"]},{"label":"Support groups","value":"Private Facebook groups: RETpositive and LUNGevity RET Renegades.","sourceIds":["home"]},{"label":"Research","value":"100 percent of donations go to research, per RETpositive.","sourceIds":["home"]}],"id":"2405ea78-e3d3-44c5-b66d-dc5f5373e7fb","kind":"company","slug":"retpositive","revision":"98b4c2a7-bb29-4871-8749-470c2222796d","canonicalUrl":"https://kevinwimer.com/companies/retpositive/","publishedAt":"2026-10-25T03:24:34.854Z","updatedAt":"2026-10-25T03:24:34.854Z","previewOnly":false,"logoAssetId":"bb5ce0a8-3e53-4c15-a81a-ed96516bef22","logoBackground":"light","logoSource":{"pageUrl":"https://www.retpositive.org/","assetUrl":"https://www.retpositive.org/cdn/shop/files/modern_logo.png?v=1654966560&width=500","checkedAt":"2026-10-25T02:10:20.924Z"},"shareImageAssetId":"df0c0d54-1632-4887-8839-e47dd0270b4c"}