{"title":"The NTRKers","summary":"Global nonprofit patient group, founded by patients and families, for adults and children with NTRK gene fusion cancers of any type, including lung, thyroid, sarcoma, salivary gland and brain tumors.","body":"The NTRKers is a global nonprofit patient group for people with NTRK gene fusion cancer. It was founded by patients and loved ones and is supported by clinical experts. An NTRK fusion can drive cancer anywhere in the body, so members have many tumor types, including thyroid, lung, sarcomas, salivary gland and central nervous system tumors. Both adults and children are affected.\n\n## What they offer\n\n- A community for patients and families, with patient stories and peer connection.\n- Plain-language explanations of NTRK fusion cancer and FAQs on diagnosis, testing, treatment and disease management.\n- A list of clinicians familiar with NTRK gene fusions.\n- A clinical trial finder built with SparkCures.\n- News and events, such as virtual roundtables on liquid biopsy and drug resistance.\n\n## How to join and what it costs\n\nJoin through its site. I did not see any fee to join (checked October 24, 2026).\n\n## How it fits with other groups here\n\nNTRK fusions are rare, which makes a group like this especially useful. It sits alongside other biomarker groups such as [The ROS1ders](/companies/the-ros1ders/) and [ALK Positive](/companies/alk-positive/). My [tumor testing guide](/resources/tumor-testing/) explains how fusions are found.\n\n## Questions I would ask\n\n- Which tests found NTRK fusions for other members?\n- Which NTRK experts do members see?\n- What trials are open for my tumor type?\n- Is there support for parents of children with NTRK fusion cancer?\n\n## Contacts\n\n- Website: [ntrkers.org](https://ntrkers.org/)","topics":["expert-support","tumor-testing","clinical-trials"],"capabilities":["patient-support","clinical-trials"],"organizationType":"patient-community","services":["peer-support","advocacy","patient-education","trial-navigation"],"communityFocus":["People with NTRK fusion cancer","Parents of children with cancer","Caregivers"],"sources":[{"id":"home","label":"The NTRKers home page","url":"https://ntrkers.org/","publisher":"The NTRKers","checkedAt":"2026-10-24","supports":"Global non-profit patient group founded by patients and loved ones living with NTRK gene fusion cancer, supported by clinical experts; tumor types include thyroid, lung, sarcomas, salivary gland and CNS tumors; adults and children affected; NTRK experts list; FAQs on diagnosis, treatment, testing and management; research finder with SparkCures for NTRK trials; virtual roundtables with Illumina on liquid biopsy and drug resistance.","type":"official"}],"applicability":"For people with a NTRK fusion-positive cancer of any type, and their caregivers, who want to connect with others who share the same biomarker. Inclusion is not a recommendation or a finding that this group is right for your situation.","limitations":"Group details are reported by the organization unless noted, as of October 2026. Peer groups share experience, not medical advice; talk with your care team about testing and treatment.","disclosure":{"type":"none","text":"I have no financial or business relationship with The NTRKers."},"reviewedAt":"2026-10-24","relatedIds":["f7221927-6b87-4be3-9a7c-906768a192a5","bcbf518f-872e-434c-b031-3d6c266ceaa4","52d66337-9687-4a7a-9364-ca650f9f9d00","3e02cb17-befd-42aa-8a8c-6e01766e3022"],"assetIds":["4ef3321c-37fc-4ced-a561-1398b515de20","518d881c-9d32-4ecf-a21c-3b467809c51a"],"relatedX":[],"website":"https://ntrkers.org/","serviceStatus":"available","access":{"label":"The NTRKers home and resources","url":"https://ntrkers.org/"},"regions":["International"],"facts":[{"label":"Who it serves","value":"Adults and children with NTRK fusion cancer of any type.","sourceIds":["home"]},{"label":"Founded by","value":"Patients and loved ones, supported by clinical experts.","sourceIds":["home"]},{"label":"Trial search","value":"Trial finder built with SparkCures.","sourceIds":["home"]},{"label":"Experts","value":"Publishes a list of clinicians familiar with NTRK fusions.","sourceIds":["home"]}],"id":"b339633a-1aa7-49d6-b692-a764af853a9d","kind":"company","slug":"the-ntrkers","revision":"a61b6db7-eb4d-4925-be18-e8f4ef172610","canonicalUrl":"https://kevinwimer.com/companies/the-ntrkers/","publishedAt":"2026-10-25T03:24:34.854Z","updatedAt":"2026-10-25T03:24:34.854Z","previewOnly":false,"logoAssetId":"4ef3321c-37fc-4ced-a561-1398b515de20","logoBackground":"light","logoSource":{"pageUrl":"https://ntrkers.org/","assetUrl":"https://ntrkers.org/wp-content/uploads/2025/03/illumina-logo.png","checkedAt":"2026-10-25T02:11:24.589Z"},"shareImageAssetId":"518d881c-9d32-4ecf-a21c-3b467809c51a"}