# Exon 20 Group

Free global group for people with EGFR or HER2 exon 20 insertion cancers: case navigation, biomarker report review, trial matching, peer buddies and support groups.

Author: Kevin Wimer
Canonical URL: https://kevinwimer.com/companies/exon-20-group/
Stable ID: 47b40593-5355-473b-9161-a6875226feb8
Revision: e50dfc71-5eca-48e6-9184-5a9ec4c78a3e
Published: 2026-10-25T02:18:32.515Z
Updated: 2026-10-25T02:18:32.515Z
Reviewed: 2026-10-22

## Who this is for
For patients and caregivers looking for community, education or help navigating care. Inclusion is not a recommendation or a finding that this group is right for your situation.

The Exon 20 Group is a global community for people with EGFR exon 20 or HER2 exon 20 insertion mutations, in lung cancer and other solid tumors, and their families. It's home to the EGFR Exon 20 Warriors and HER2 Warriors support groups. It's a special initiative of ICAN, the International Cancer Advocacy Network, a 501(c)(3).

## What they offer

- Ongoing navigation of your case, including review of your biomarker testing reports.
- Second opinion referrals and molecular tumor board access when doctors disagree.
- Clinical trial, expanded access and compassionate use matching.
- An "Angel Buddy," a peer who helps with side effects and the day-to-day.
- Closed online support groups, virtual meet-ups and webinars on new drugs.
- Research it funds, a mutation registry, and surveys or studies that pay you for your time.

## How to join and what it costs

As of October 2026, membership is free. They onboard each patient first: you fill out the New Patient Form on their website (or email or call), then have an intake call to confirm your mutation from your NGS report. They review consent forms with you on that call.

## How it fits with other groups here

The Exon 20 Group is narrower than [EGFR Resisters](/companies/egfr-resisters/), which covers all EGFR lung cancer. Its sister ICAN group for MET is [MET Crusaders](/companies/met-crusaders/). Other biomarker groups here include [ALK Positive](/companies/alk-positive/), [The ROS1ders](/companies/the-ros1ders/) and [KRAS Kickers](/companies/kras-kickers/). My [find support](/resources/find-support/) guide covers how to choose.

## Questions I would ask

- What do I need to send for my intake call?
- Can you review my NGS report and confirm my exact insertion?
- Which trials or expanded access options fit me?
- Can you pair me with an Angel Buddy?

## Contacts

- Website: [exon20group.org](https://www.exon20group.org/)
- How to join: New Patient Form on the website
- Email: exon20@exon20group.org
- Phone: 602-618-0183

## Limits and context
Program details are reported by the group unless noted, as of October 2026. Confirm current programs, eligibility and any costs directly with the group. A community group does not give medical advice.

## Relationships and disclosures
I have no financial or business relationship with this organization.

## Sources
- [Exon 20 Group home page](https://www.exon20group.org/) — Exon 20 Group; official; checked 2026-10-22; Free membership after onboarding; New Patient Form or call; navigation, report review, second opinions, trial/expanded access matching, Angel Buddy, support groups, research, compensated studies; special initiative of ICAN, 501(c)(3), EIN 86-0818253.
- [Marcia K. Horn, JD (MET Crusaders)](https://metcrusaders.org/team/marcia-k-horn-jd/) — MET Crusaders; official; checked 2026-10-22; Marcia Horn leads ICAN; the Exon 20 Group is under ICAN's umbrella.
- [International Cancer Advocacy Network nonprofit record](https://projects.propublica.org/nonprofits/organizations/860818253) — ProPublica Nonprofit Explorer; research; checked 2026-10-22; International Cancer Advocacy Network, Phoenix AZ, EIN 86-0818253, 501(c)(3).

Organization website: https://www.exon20group.org/

Organization type: Nonprofit

Services: Connect with peers, Patient education, Patient advocacy, Clinical trial navigation, Research & navigation

Community focus: EGFR exon 20 insertion, HER2 exon 20 insertion, EGFR-positive lung cancer, Caregivers

Service status: available

## Company facts
- **Who it serves:** People with EGFR or HER2 exon 20 insertions in lung cancer or other solid tumors, and their families. (Sources: home)
- **Cost:** As of October 2026, membership is free after an onboarding intake. (Sources: home)
- **Parent organization:** Special initiative of ICAN, International Cancer Advocacy Network, a 501(c)(3) (EIN 86-0818253). (Sources: home, propublica)
- **Navigation:** Biomarker report review, second opinion referrals, trial, expanded access and compassionate use matching. (Sources: home)

Topics: getting-started, expert-support, clinical-trials
Capabilities: patient-support, clinical-trials, research-support

Related record IDs: 656030c7-047a-40e9-b47b-14b19f3fd2bd

Follow Kevin on X: https://x.com/kevinace

Educational information, not an individualized treatment recommendation.