# RETpositive

Patient-driven nonprofit for people with RET-positive cancers of any type, with private Facebook support groups for patients and caregivers, education and research funding.

Author: Kevin Wimer
Canonical URL: https://kevinwimer.com/companies/retpositive/
Stable ID: 2405ea78-e3d3-44c5-b66d-dc5f5373e7fb
Revision: 98b4c2a7-bb29-4871-8749-470c2222796d
Published: 2026-10-25T03:24:34.854Z
Updated: 2026-10-25T03:24:34.854Z
Reviewed: 2026-10-24

## Who this is for
For people with a RET-positive cancer of any type, and their caregivers, who want to connect with others who share the same biomarker. Inclusion is not a recommendation or a finding that this group is right for your situation.

RETpositive is a patient-driven 501(c)(3) nonprofit for people with RET-positive cancer, which is caused by a mutation or abnormal rearrangement of the RET gene. RET changes show up most often in lung cancer and several thyroid cancers, and in an estimated 1 to 2 percent of other cancers, including ovarian, pancreatic, salivary, breast and colorectal. The group is open to anyone with a RET-driven cancer, whatever the tumor type.

## What they offer

- Private Facebook support groups for patients and caregivers: RETpositive, for any RET-driven cancer, and LUNGevity RET Renegades for lung cancer.
- Education: videos, webinars, patient stories and pages on treatments, resources and RET clinical trials.
- Research funding. RETpositive says 100 percent of donations go directly to research.
- A quarterly newsletter on RET trials, therapies and stories.
- A collaboration with 23andMe and other lung cancer groups on the Lung Cancer Genetics Study, open to U.S. adults who have had lung cancer.

## How to join and what it costs

Ask to join the private Facebook group that fits you, or sign up for the newsletter on its site. I did not see any fee to join (checked October 24, 2026).

## How it fits with other groups here

RETpositive is one of the biomarker groups, like [ALK Positive](/companies/alk-positive/), [EGFR Resisters](/companies/egfr-resisters/), [The ROS1ders](/companies/the-ros1ders/) and [MET Crusaders](/companies/met-crusaders/). Its lung cancer group runs with [LUNGevity](/companies/lungevity/). My [tumor testing guide](/resources/tumor-testing/) covers how biomarkers like RET are found.

## Questions I would ask

- Which RET treatments and trials are people in the group discussing for my cancer type?
- What resistance patterns have members seen after a first RET drug?
- Which experts do members see for RET-positive cancer?
- Is there a group for my caregiver?

## Contacts

- Website: [retpositive.org](https://www.retpositive.org/)

## Limits and context
Group details are reported by the organization unless noted, as of October 2026. Peer groups share experience, not medical advice; talk with your care team about testing and treatment.

## Relationships and disclosures
I have no financial or business relationship with RETpositive.

## Sources
- [RETpositive home page](https://www.retpositive.org/) — RETpositive; official; checked 2026-10-24; Patient-driven 501(c)(3) nonprofit; RET mutation or rearrangement; most common in lung and several thyroid cancers; 1-2% of other cancers including ovarian, pancreatic, salivary, breast and colorectal; private Facebook groups RETpositive (any RET-driven cancer) and LUNGevity RET Renegades; 100% of donations go to research; quarterly newsletter; Lung Cancer Genetics Study with 23andMe and 20 other lung cancer groups; videos, webinars, RET clinical trials pages; EIN 87-1841713.

Organization website: https://www.retpositive.org/

Organization type: Patient community

Services: Connect with peers, Patient advocacy, Patient education

Community focus: People with RET-positive cancer, Caregivers

Information/access: [RETpositive home and community](https://www.retpositive.org/)

Supported regions: United States, International

Service status: available

## Company facts
- **Who it serves:** People with any RET-driven cancer, and caregivers. (Sources: home)
- **Where RET shows up:** Most often lung and thyroid cancers; 1 to 2 percent of several others. (Sources: home)
- **Support groups:** Private Facebook groups: RETpositive and LUNGevity RET Renegades. (Sources: home)
- **Research:** 100 percent of donations go to research, per RETpositive. (Sources: home)

Topics: expert-support, tumor-testing
Capabilities: patient-support, research-support

Related record IDs: f7221927-6b87-4be3-9a7c-906768a192a5, 656030c7-047a-40e9-b47b-14b19f3fd2bd, 068a85d5-9225-4be5-a74e-03d07a77c661, 3e02cb17-befd-42aa-8a8c-6e01766e3022

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Educational information, not an individualized treatment recommendation.