# The NTRKers Global nonprofit patient group, founded by patients and families, for adults and children with NTRK gene fusion cancers of any type, including lung, thyroid, sarcoma, salivary gland and brain tumors. Author: Kevin Wimer Canonical URL: https://kevinwimer.com/companies/the-ntrkers/ Stable ID: b339633a-1aa7-49d6-b692-a764af853a9d Revision: a61b6db7-eb4d-4925-be18-e8f4ef172610 Published: 2026-10-25T03:24:34.854Z Updated: 2026-10-25T03:24:34.854Z Reviewed: 2026-10-24 ## Who this is for For people with a NTRK fusion-positive cancer of any type, and their caregivers, who want to connect with others who share the same biomarker. Inclusion is not a recommendation or a finding that this group is right for your situation. The NTRKers is a global nonprofit patient group for people with NTRK gene fusion cancer. It was founded by patients and loved ones and is supported by clinical experts. An NTRK fusion can drive cancer anywhere in the body, so members have many tumor types, including thyroid, lung, sarcomas, salivary gland and central nervous system tumors. Both adults and children are affected. ## What they offer - A community for patients and families, with patient stories and peer connection. - Plain-language explanations of NTRK fusion cancer and FAQs on diagnosis, testing, treatment and disease management. - A list of clinicians familiar with NTRK gene fusions. - A clinical trial finder built with SparkCures. - News and events, such as virtual roundtables on liquid biopsy and drug resistance. ## How to join and what it costs Join through its site. I did not see any fee to join (checked October 24, 2026). ## How it fits with other groups here NTRK fusions are rare, which makes a group like this especially useful. It sits alongside other biomarker groups such as [The ROS1ders](/companies/the-ros1ders/) and [ALK Positive](/companies/alk-positive/). My [tumor testing guide](/resources/tumor-testing/) explains how fusions are found. ## Questions I would ask - Which tests found NTRK fusions for other members? - Which NTRK experts do members see? - What trials are open for my tumor type? - Is there support for parents of children with NTRK fusion cancer? ## Contacts - Website: [ntrkers.org](https://ntrkers.org/) ## Limits and context Group details are reported by the organization unless noted, as of October 2026. Peer groups share experience, not medical advice; talk with your care team about testing and treatment. ## Relationships and disclosures I have no financial or business relationship with The NTRKers. ## Sources - [The NTRKers home page](https://ntrkers.org/) — The NTRKers; official; checked 2026-10-24; Global non-profit patient group founded by patients and loved ones living with NTRK gene fusion cancer, supported by clinical experts; tumor types include thyroid, lung, sarcomas, salivary gland and CNS tumors; adults and children affected; NTRK experts list; FAQs on diagnosis, treatment, testing and management; research finder with SparkCures for NTRK trials; virtual roundtables with Illumina on liquid biopsy and drug resistance. Organization website: https://ntrkers.org/ Organization type: Patient community Services: Connect with peers, Patient advocacy, Patient education, Clinical trial navigation Community focus: People with NTRK fusion cancer, Parents of children with cancer, Caregivers Information/access: [The NTRKers home and resources](https://ntrkers.org/) Supported regions: International Service status: available ## Company facts - **Who it serves:** Adults and children with NTRK fusion cancer of any type. (Sources: home) - **Founded by:** Patients and loved ones, supported by clinical experts. (Sources: home) - **Trial search:** Trial finder built with SparkCures. (Sources: home) - **Experts:** Publishes a list of clinicians familiar with NTRK fusions. (Sources: home) Topics: expert-support, tumor-testing, clinical-trials Capabilities: patient-support, clinical-trials Related record IDs: f7221927-6b87-4be3-9a7c-906768a192a5, bcbf518f-872e-434c-b031-3d6c266ceaa4, 52d66337-9687-4a7a-9364-ca650f9f9d00, 3e02cb17-befd-42aa-8a8c-6e01766e3022 Follow Kevin on X: https://x.com/kevinace Educational information, not an individualized treatment recommendation.