Nonprofit
ALK Positive
Patient-founded nonprofit for people with ALK-positive cancer and their care partners: peer groups, education, a second opinion program and research funding.
Patient advocacy
Back to Patient organizationsOrganizations working to represent and support patients’ interests.
14 organizations
Nonprofit
EGFR Resisters
Patient-driven nonprofit community for people with EGFR-positive lung cancer and their caregivers: an active online group, education, summits and co-funded research.
Nonprofit
Exon 20 Group
Free global group for people with EGFR or HER2 exon 20 insertion cancers: case navigation, biomarker report review, trial matching, peer buddies and support groups.
Nonprofit
GO2 for Lung Cancer
National lung cancer advocacy nonprofit founded by patients and survivors. It offers a free HelpLine, LungMATCH treatment and clinical trial navigation, phone buddies, support groups and free educational materials.
Nonprofit
HealthWell Foundation
Independent nonprofit that gives grants to insured people who cannot afford copays, coinsurance, deductibles or premiums, through disease funds covering many cancers and other conditions that open and close as funding changes.
Nonprofit
KRAS Kickers
Patient-led nonprofit for people with any KRAS-mutated cancer and their care partners: plain-language research updates, expert webinars, peer mentors and a private online group.
Nonprofit
LUNGevity
National lung cancer nonprofit offering a free HELPLine with lung cancer navigators, one-on-one peer mentors, virtual meetups, online communities and the HOPE Summit; a major funder of lung cancer research.
Nonprofit
MET Crusaders
Free global support and navigation group for people with MET-altered cancer, including MET exon 14 skipping and MET amplification, and their care partners.
Nonprofit
Patient Advocate Foundation
National nonprofit offering free one-on-one case management for insurance problems, copays, access to care, living expenses and workplace issues, plus TotalAssist financial aid funds for treatment costs.
Patient community
RETpositive
Patient-driven nonprofit for people with RET-positive cancers of any type, with private Facebook support groups for patients and caregivers, education and research funding.
Patient community
The NTRKers
Global nonprofit patient group, founded by patients and families, for adults and children with NTRK gene fusion cancers of any type, including lung, thyroid, sarcoma, salivary gland and brain tumors.
Nonprofit
The ROS1ders
Volunteer-run nonprofit for people with ROS1-positive cancer and their caregivers: private online groups, twice-monthly Zoom meetups, a ROS1 physician list and patient-driven research.
Nonprofit
Triage Cancer
National nonprofit offering free education and free one-on-one Legal and Financial Navigation on health insurance, work, disability, finances and estate planning, with no income or location requirements.
Nonprofit
Young Lung Cancer Initiative
Nonprofit for people diagnosed with lung cancer at 50 or younger and their families: free monthly Zoom groups, caregiver and grief groups, a resource directory and webinars.
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