Nonprofit
ALK Positive
Patient-founded nonprofit for people with ALK-positive cancer and their care partners: peer groups, education, a second opinion program and research funding.
Education & information
Back to Patient organizationsOrganizations providing cancer information and learning resources.
22 organizations · Showing 1–20
Nonprofit
American Cancer Society ACS ACTS
Access to Clinical Trials & Support: the American Cancer Society program that pairs personalized trial matching (through Massive Bio) with an ACS cancer information specialist and help with lodging, rides and other needs.
Nonprofit
American Lung Association
National lung health nonprofit with a free Lung HelpLine staffed by registered nurses and respiratory therapists, plus free Lung Health Navigators for people living with lung cancer.
Nonprofit
Cancer Patient Lab
Patient-led nonprofit that runs learning sessions with researchers and clinicians on advanced diagnostics, tissue preservation and personalized treatments, including personalized cancer vaccines.
Nonprofit
Cancer Research Institute
Nonprofit that funds immunotherapy research and offers a free Clinical Trial Finder, built with Carebox, plus optional one-on-one help from trial navigators by phone or email.
Nonprofit
Cancer Support Community
A first conversation when cancer feels overwhelming: emotional support and help finding groups, counseling and practical resources. Its Cancer Support Helpline serves patients and loved ones, primarily in the U.S. and Canada.
Nonprofit
CancerCare
Support groups for patients, caregivers and people grieving a cancer loss, plus individual counseling for eligible New York and New Jersey residents. Oncology social workers lead the support.
Nonprofit
EGFR Resisters
Patient-driven nonprofit community for people with EGFR-positive lung cancer and their caregivers: an active online group, education, summits and co-funded research.
Nonprofit
Exon 20 Group
Free global group for people with EGFR or HER2 exon 20 insertion cancers: case navigation, biomarker report review, trial matching, peer buddies and support groups.
Nonprofit
GO2 for Lung Cancer
National lung cancer advocacy nonprofit founded by patients and survivors. It offers a free HelpLine, LungMATCH treatment and clinical trial navigation, phone buddies, support groups and free educational materials.
Nonprofit
KRAS Kickers
Patient-led nonprofit for people with any KRAS-mutated cancer and their care partners: plain-language research updates, expert webinars, peer mentors and a private online group.
Nonprofit
Lung Cancer Research Foundation
Nonprofit that funds lung cancer research and runs a free support line, a clinical trial finder and free education for patients and caregivers.
Nonprofit
LUNGevity
National lung cancer nonprofit offering a free HELPLine with lung cancer navigators, one-on-one peer mentors, virtual meetups, online communities and the HOPE Summit; a major funder of lung cancer research.
Nonprofit
MET Crusaders
Free global support and navigation group for people with MET-altered cancer, including MET exon 14 skipping and MET amplification, and their care partners.
Nonprofit
NCCN Guidelines for Patients
Free plain-language versions of the NCCN cancer treatment guidelines, covering dozens of cancer types including non-small cell and small cell lung cancer, to help you talk with your care team about options.
Academic / research center
NCI Cancer Information Service
The National Cancer Institute's free, confidential information service. Specialists answer questions by phone, live chat and email, including help understanding treatment, finding NCI-supported clinical trials and locating cancer centers.
Nonprofit
NeedyMeds
National nonprofit with a searchable database of drug maker patient assistance programs, coupons and copay help, affordable clinics and diagnosis-based assistance, plus a toll-free helpline.
Patient community
RETpositive
Patient-driven nonprofit for people with RET-positive cancers of any type, with private Facebook support groups for patients and caregivers, education and research funding.
Patient community
The NTRKers
Global nonprofit patient group, founded by patients and families, for adults and children with NTRK gene fusion cancers of any type, including lung, thyroid, sarcoma, salivary gland and brain tumors.
Nonprofit
The ROS1ders
Volunteer-run nonprofit for people with ROS1-positive cancer and their caregivers: private online groups, twice-monthly Zoom meetups, a ROS1 physician list and patient-driven research.
Related guides
All guides
Cancer just hit your family. Start here.
Get the reports, ask about tumor testing, find a specialist, and put the next steps in one place.
Make a second opinion useful
Choose the right review, gather records, check costs and make sense of a second, third or fourth opinion.
Find people who know your cancer
Start with your disease and biomarker. Find practical help, not another endless feed.